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Name:Robin Globensky
Email:rglobensky{at}gmail.com
Where are
you from:
Montana
Comments:I can not tell you how much reading your website just meant to me. My son was diagnosed with a club foot before he was born so we already had an appointment with a local "expert" before he was even born. We casted the foot for six months with seemingly no change. We saw two differant doctors before finally being refered to Shriners in Spokane and Dr. Baird who was trained by Ponseti himself. He was quickly diagnosed with an atypical club foot and eventually required surgery to release the soft tissue in his heal (I don't know medical terms) and we are finally out of casts and into braces at night. the main joy I had from your site was reading how atypical cases are more likely to slip out of their casts. I was looking over my sons medical records and saw that the dumb doctor actually put in the notes that he thought I was soaking my boy's casts off because they slipped so much. Thank you so much for the justification. :)
April 24, 2013 04:02:00 (GMT Time)



Name:Myra Love
Email:blk_diamond317{at}yaho..com
Where are
you from:
Indianapolis,Indiana
Comments:I was just on google trying to see what i could find and came across yours.. very helpful and shed some light on mines. i have a 12 month old born with bilateral clubfoot.
December 28, 2012 01:10:04 (GMT Time)



Name:Dani Paschall
Email:paschadr{at}hotmail.com
Where are
you from:
Graham, WA
Comments:Our 7 mo old son was born with atypical clubfoot. Did not know about this until our doc from Mary Bridge in Tacoma told us about this type of clubfoot. It was helpful to read Kai's story and know that their can be successful intervention for this type of foot. Our son has had many of the same sx as your Kai (slipping out of casts, relapsing after casting). Thank you for sharing your information.
May 22, 2012 08:15:41 (GMT Time)



Name:Julie Taylor
Email:jgtaylor{at}insightbb.com
Where are
you from:
Bowling Green,KY
Comments:Great info. When did you put this page together. Have you heard when that updated paper will be published regarding complex clubfeet and longterm success. I have a 4 month old who was treated with no success and 2nd opinion was with Dr. Morcuende. Had 5 casts and repeat tenotomy. Return in a week to have casts removed and start brace wear for 3 months. Thanks!
March 15, 2012 02:31:25 (GMT Time)



Name:Nancy Radcliffe
Email:radcliffe.nancy{at}gmail.com
Where are
you from:
Nova Scotia, Canada
Comments:Thank you so much for sharing Kai's story and for creating this incredibly informative website. I believe I am one of the fortunate few who - despite being born in 1962 - benefited from the Ponseti Method with excellent results. I find it strange at this stage in my life (currently age 49) to be now curious about my own foot. And because I'd like to dedicate some time to an online forum (STEPS charity in the UK), by helping to allay the fears of parents of children with club feet, I'd like to familiarize myself with my own situation. According to my mother, I was at the highest end of the scale for severity. This led me to question what exactly that means, which led me read about Plantaris (and to your site). I'm now wondering if I had it. (I use past tense, because other than superficial differences, my foot is fine. I have no issues.) My surgeon passed away many years ago and I've had no need to find another doctor, so I'm wondering if you would be willing (through photos and email)
October 24, 2011 12:56:21 (GMT Time)



Name:Melanie Mikolas
Email:melanie.mikolas{at}gmail.com
Where are
you from:
Denver Colorado
Comments:My son has complex,or atypical clubfoot. Today he is 14 months old and we are seen by Dr. Morcuende; in fact, we have a check up this coming Monday. My son has been walking for 2 weeks. Thanks for the pictures!
October 21, 2011 18:52:01 (GMT Time)



Name:Johanna
Email:jokirsch81{at}hotmail.com
Where are
you from:
Colorado
Comments:Thank you so much for sharing this story. I thought I was really an informed parent about clubfoot, I met with the doctor prior to my daughter's birth. We were told at the 20 week ultrasound that she had unilateral clubfoot. I researched doctors in our area and was confident I was doing everything I could. On her 7th cast her foot began to look different, it didn't look like it was growing, it developed a bump on the top. I asked the doctor treating her over and over if something else was going on or if her foot needed additional care that he was unable to provide. He assured me that all she needed was more casts. I continued to research and found your site, after learning more about complex clubfoot I called Dr. Morcuende at the University of Iowa. Currently we travel back and forth every 5 days to get her casting done. Without you I never would have know what to do. Thank you.
August 20, 2011 17:30:52 (GMT Time)



Name:Shelby Blais
Email:shelbyblais{at}gmail.com
Where are
you from:
Bonney Lake, WA
Comments:I just wanted to say thank you for making this website. I have spent hours researching complex clubfeet and this is the most informative website I have come across. Not only is it easy to understand but it is nice to see real pictures of what complex clubfeet look like. We are also seeing Dr Mosca and my son is now having his second relapse so back to casts again! Its nice to know that there is another family going through the same thing. Sometimes it is really lonely since no one understand although Im sure it has been very hard for you. Thank you so much!
February 16, 2010 01:22:27 (GMT Time)



Name:Jennifer
Email:brwneyez_85{at}yahoo.com
Where are
you from:
Illinois
Comments:My son is going to be 1 next month and his foot looks exactly like Kai's still. I'm beginning to feel as if I'm breaking down inside or losing hope. We're now seeing a second specalist who continued casting, did a tendon release on his heel and has now put him in a Ponseti Brace. The brace does not stay on and his clubfoot is constantly slipping out. I believe it's because his foot isn't ready for it. The foot doesn't even stay in a 90 degree position. My son can't put his foot flat on the floor. He stands with the top of his toes on the floor. So, I was hoping you can put an updated picture of Kai's foot. I just want to be reassured that this situation does get better. Thank you.
September 19, 2009 04:23:00 (GMT Time)



Name:Evelyne Hervy
Email:evelyne.hervy{at}bluewin.ch
Where are
you from:
switzerland
Comments:Thank you for all the work you put in your web-site. We have a son born 5-12-09 with bi-lateral complex clubfoot. He was badly casted to start up with and he is now treated in Geneva where he was well diagnosed. Your site was very helpful, as I suspected there was something wrong with his feet, but couldn't quite put a name on it. My son does not have the plantar crease and yet he is complex, the other aspects of the a-typical clubfoot are all here. Your info helped me to understand what was going on. Finally, I would like to know if you have succeeded in treating Kay's foot in a satisfactory way. I thank you once more for your website and send you all our blessings from Switzerland.
June 19, 2009 15:34:40 (GMT Time)



Name:Brian Tan
Email:btantengsuan{at}yahoo.com
Where are
you from:
Malaysia
Comments:My daughter has bilateral clubfeet and she has done casting, tenotomy and now in DBBs for over 3mths. We noticed that her large toes have creases but no sole deep crease. The lesser toes look normally long. Her feet are considered as complex by Dr Ponseti's doctors through photos. Question, what are the symptoms and how to identify if its relapsing ? Thanks, Brian
February 4, 2009 15:23:35 (GMT Time)



Name:shawnee
Email:number_23{at}bellsouth.net
Where are
you from:
Florida
Comments:Let's swap links, I'll put you my atypical clubfoot page and you can add me to your site here.
September 10, 2007 14:11:21 (GMT Time)



Name:Rebecca- Andrew's mom
Email:georgiareject{at}yahoo.com
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you from:
Georgia
Comments:I enjoy Kai's site. Thank you for sharing his story. God bless
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December 8, 2005 09:46:20 (GMT Time)



Name:Cori Kelly
Email:clubfoot97@yahoo.com
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you from:
Comments:You did a wonderful job. I found this site to be very informative. Thanks!!! I hope you don't mind but I added a link from my website to yours.
May 13, 2005 02:47:08 (GMT Time)



Name:Cori Kelly
Email:clubfoot97@yahoo.com
Where are
you from:
Comments:You did a wonderful job. I found this site to be very informative. Thanks!!!
May 13, 2005 02:37:50 (GMT Time)



Name:Darby Brennan
Email:darby206@msn.com
Where are
you from:
Seattle
Comments:Love the web page.. my daughter sees Dr. Schmale at Children's Seattle and we are thinking of switching to Dr. Mosca, even though Dr. Mosca says we are in good hands with Dr. Schmale.... I have been consulting via email w/ Dr. Ponseti - he thinks Livi may have atypical cf also. Anyhow, it's nice to read a story that is so similar to my own - and it gives me an idea of what we might expect in the future.. Livi is 14 months old now. Anyhow, I love your site!!
May 3, 2005 23:15:50 (GMT Time)



Name:Michelle
Email:mj_remington@yahoo.ca
Where are
you from:
Vancouver BC Canada
Comments:Love the site Angel!! Kai's story is so touching.
January 27, 2005 11:13:23 (GMT Time)



Name:Kellie Leasure
Email:kellieleasure@yahoo.com
Where are
you from:
Denver,CO
Comments:Moving family back to Iowa for good. Too much travel to keep up with Annie's treatments. I need to know more about the Mitchell brace. Annabel is having another surgery on the 14th. Let's chat. Kellie
January 6, 2005 00:24:28 (GMT Time)



Name:Michele
Email:chele323232@yahoo.com
Where are
you from:
New Jersey
Comments:Your site is great! Our son was born with unilateral right clubfoot and is treated by Dr. Herzenberg in Baltimore, MD
December 1, 2004 02:37:43 (GMT Time)



Name:Shannon Kline
Email:redskline123@netzero.com
Where are
you from:
Pennsylvania
Comments:Great site! I'm sure Kai is doing wonderfully now! I'm just visiting from nosurgery4clubfoot!!!
November 30, 2004 05:44:30 (GMT Time)



Name:Christine Walker
Email:walker2540@southernphone.com.au
Where are
you from:
NSW Australia
Comments:I loved your website and found it very informative. My son was born 7th of June 2004 with bilateral clubfeet with bilateral plantaris.(atypical clubfeet) Would love to hear from anyone in a similar situation.
November 2, 2004 08:44:29 (GMT Time)



Name:Christine Walker
Email:walker2540@southernphone.com.au
Where are
you from:
NSW Australia
Comments:I loved your website and found it very informative. My son was born 7th of June 2004 with bilateral clubfeet with bilateral plantaris. Would love to hear from anyone in a similar situation.
November 2, 2004 08:43:43 (GMT Time)



Name:Jennifer Freeman
Email:mjz28ss@aol.com
Where are
you from:
NC
Comments:Great Job. I was wondering what "atypical" clubfoot was. Very informative. I am now educated enough about this to be on the lookout for the condition in Kaitlin. Great pictures and detail.
June 30, 2004 05:17:54 (GMT Time)



Name:Tonya Lee
Email:dtmnlee@cox.net
Where are
you from:
San Diego, California
Comments:My son Nathan was born with bcf 1-7-01. He was treated by Dr. Colburn and is doing great. He finally finished wearing his dbb's at 3 years 3 months. I loved reading your web site. Thanks for sharing.
June 15, 2004 14:27:25 (GMT Time)



Name:Angel
Email:m_kitaki@hotmail.com
Where are
you from:
Washington
Comments:Welcome everyone! Please sign the guestbook and let me know what you think and what you would like to see added!
May 16, 2004 20:52:05 (GMT Time)



Name:Sarah Beaver
Email:sarah.beaver@agcocorp.com
Where are
you from:
Jackson MN
Comments:I am just looking in to Plantaris sense Dr Ponsiti e-mailed me about my daughers ability to get out of the cast and DBB shoes. He brought this up as a possable cause. Thank you for putting togeather a web sit for this condition. It is nice to have the info.
April 21, 2004 18:24:52 (GMT Time)



Name:RAśl VC
Email:webmaster@portalprocesal.com
Where are
you from:
spain
Comments:Visit the web www.piezambo.com , is very good and it's a tributte of dr. Ponseti's Method.
Febuary 6, 2004 22:34:57 (GMT Time)



Name:Raśl VC
Email:webmaster@portalprocesal.com
Where are
you from:
spain
Comments:My english is very bad. The webs than adifferenfoot are necessary for expanded this kind of troubles. Congratulations for all and don't surrender. Raśl VC
Febuary 6, 2004 22:32:56 (GMT Time)



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Email:
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December 15, 2003 18:51:11 (GMT Time)